Whole bunch of stuff

First my Husband is sick with sneezing and coughing so he went to the Drs on Thursday just to make sure it's "just a cold" and it is. The Dr suggested that since I have major surgery in just a few weeks and obviously my immune system is down that my Hubby sleep in a seperate bed and when he is around me to wear a mask. And don't worry we've picked up some Lysol Disinfectant spray to spray in the rooms as well.

Secondly, since these "episodes" have started I have kept a very detailed log on when the seizures take place, what I'm doing, new symptoms, etc. I was reviewing that log the past few days and *knock on wood* I'm going on a few days seizure free but while looking over the log I noticed that over those few days I was barely on the computer. Is it the medicine kicking in finally? Is it that the computer screen is a trigger? I don't know, but I won't be online much anymore just to be safe and cover all basis.

And third, some of you may know who Anwar Knight is from CTV News Weather. As a news and weather junkie I've followed him from The Weather Network to CTV News, or rather you could say he's followed me since I watched those programs before he was there anyways:) He was diagnosed earlier this year with Non-Hodgkins Lymphoma and has been battling it since very publicly he even has an ongoing blog chronicling his journey. I contacted him to wish him the best and he emailed me back with some great advice. A quote from his email that really hit me because God knows it's true,

"The one thing I have learned is not to jump to conclusions and limit your web surfing. Until you know exactly what your dealing with, there is no point in escalating the anxiety. I regret googling so much....it made for some terrible days. Leave the bulk of the facts to your doctors."

It's true and I found myself googling everything and now I will stop. As I said above I will not be on the computer much anyways, I think I will limit myself to a few minutes every few days. He wished me well and I wish him well in his journey, life is a long journey and you just have to roll with the punches and endure it's ups and downs. So take care everyone!

~Tara

Kind of Confused.

I'm kind of confused as to why I'm having more Seizures since being on the Seizure medication than when I wasn't. Now it's been pointed out to me that it's possible I'm just having more because well I'm just having more and if I wasn't on the medication I'd have well more lol That's a possibility, I just find it odd. I've had 10 seizures since Friday when I started the medication and prior to friday it was 1 whole month that I had 10 seizures in, so you can see my concern. And since my Surgeon is away for a week and my Family Dr is away for 2 weeks I figure I'll just wait it out while taking the medication. Of course there probably is a Surgeon on call that the secretary can page or something, I dunno. What should I do???

You all want me bald eh?!

I see that according to my poll 80% of you think I should buzz my head:) haha well see my Surgery date is Oct 21st and I won't know until Oct 19th what the Dr is doing. If he plans to do a crainiectomy (where they remove a piece of your skull) I will have my whole head buzzed. However if they are just drilling into my skull like a little burrow hole I won't be doing that! It just all depends on what I hear will happen on the 19th! And as long as they don't keep keep me on the 19th and I come home for 1 day I will let you know here on the 20th what I plan to do!

On a crappier note (I know what's crappier than the prospect of getting your skull cracked open?!) My Seizures are becoming more frequent and I hate it. I've had 9 of them in the last 48hrs and it sucks. Oh and my Family Dr is away for 2 weeks and my NeuroSurgeon is away for 1 week so I can't even consult either of them in regards to the Seizures. I guess I could call my NeuroSurgeons office and leave a message with his Secretary and she could track him down but geez! They put me on new meds, tell me they want to crack my head open and he and my Family Dr leave lol You just gotta wonder! ;)

Just a Cyst?!

Alright so I spoke with the NeuroSurgeon this morning and this is what he said!! He said that after consulting with a Bunch of his Colleagues they believe that the mass is a Cyst! They said that there are no Solid Parts and no enhancing on the MRI and they are quite sure that it is just fluid! On October 19th my Husband and I will be heading to Hamilton to meet with the Surgeon to go over what the surgery entails and to have any of our questions answered, The Surgeon is so confident in what they think it is that they have booked me for Surgery for Oct 21! I'm just SO glad to finally have a date and more of an answer as to what Horatio really is! That's all for now but I'm okay with that!

It's just nice to have a definite answer for the FIRST time throughout this whole thing, that definate being a surgery date. No more, "just wait by the phone and we'll call you" crap actually takes a lot of stress off of me. Soon this Nightmare will be over. Thankfully!

~Tara

Having a rough one :(

I'm having a rough day/night. I've had 4 Seizures within the last 7 hrs, the last to which I awoke from sleep to have. Argh. Now I'm lucky *knock on wood* that these aren't physically terrible but they are frightening none the less. I hope my Surgeon calls in the morning so that I can address this with him. I don't think I'm going to try to go back to sleep tonight as the last one I woke up to have and the one before was when I laid down to go to sleep, Blah. Eff Horatio!

~Tara


Just had my 4th in 8 hrs, I'm hating this.

New Meds are kicking my butt!

Friday was the first day of my new Medication that the NeuroSurgeon put me on to help control the Seizures I've been having and they are severely kicking my butt. I was told they will make me drowsy and dizzy but boy is that an understatement! Each time I took them they knocked me out within a half an hour and I mean stone cold knocked out, good thing I only take the pills twice daily! I'm irritated though because my Surgeons office called me 3 times today on both the home phone and my cell phone and I didn't hear either phone ring that's how out of it I was. According to the voicemail left apparently my Surgeon wanted to talk to me before he went away for a week so that I'm not left stewing until he returns. His secretary said that it isn't Terribly Urgent but that he'll try to call me Monday morning before he leaves. I'm hoping this means good news like, "oh it is cystic and we just don't want you worrying" kind of thing, that would be nice! But now I have to wait until Monday morning. Grr, Grr I say lol

Everyone, meet Horatio

This is what happens when I get bored lol Seriously:) Now obviously this isn't the size of a human brain but the photo of Horatio is actually placed on the diagram exactly where it would be on my brain and it shows the approximate real estate that he is occupying.